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HMS/EDS III - I constantly look for new and better information about hypermobility syndrome and Ehlers-Danlos type III (hypermobility type) there has not been a lot of research related to this topic, nor it there a clear consensus about treatment or diagnosis

bullet HMS and related disorders page
bulletMy HMS Story
bullet HMS association
bullet Ehlers-Danlos National Foundation
bullet ARC-hypermobility info booklet

 

Restless Leg Syndrome - My specialist kept mentioning and asking about restless legs. Since I didn't have a clue what it really was until I went and looked it up on the internet I thought I'd put up a link for anyone else interested in finding out more. So here are some great information sites.

bullet National Institute of Neurological Disorders and Stroke
bullet Science Makes Strides Against Restless Legs Syndrome(article)

 

Related conditions to HMS/EDS III can be found at the following links to heritable connective tissue disorders, information and foundation sites are linked beside those disorders for which I could find such websites.

Heritable Connective Tissue Disorders

HCTD Q&A webpage
coalition for HCTD website  
Disorder Subdivisions, or types of HCTD

        Ehlers-Danlos Syndrome (EDS national foundation)
        Epidermolysis Bullosa     (debRA of america)
        Marfan Syndrome          (National Marfans foundation)
        Osteogenesis Imperfecta  (OI Foundation)
        Pseudoxanthoma Elasticum (NAPE)
        PXE         (PXE international)                       
        Cutis Laxa
        Dwarfism (LPA)
        Skeletal Dysplasia (HSS)
        Hyperextensible Joints***HMS
        Beals Syndrome or Congenital contractural arachnodactyly (CCA)
        Hajdu Cheney
        Stickler Syndrome (SIP)
        Ectopia Lentis
        Shprintzen-Goldberg Syndrome
        Supravalvular Aortic Stenosis
        Weill-Marchesani
        Williams Syndrome (WSA)
 

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